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NCATS

How to Get Involved in Research

prevention  research  cessation  registry  clinical trials  secondhand smoke  clinical studies  disease registry  researchers  clinical specimens  Genetic Disorders  rare diseases  Rare disorders  Genetic Disease  biospecimen  biorepository  Quitting Resources  Guidance, Regulations and Compliance  Prevent Smoking and Tobacco Use 

Reports about clinical research study results are often in the news, but it can be difficult to find out about studies that are in progress. If you or a loved one has a rare condition, you may be interested in participating in a research study. This guide can help you find current research studies.

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NCATS

How to Find a Disease Specialist

prevention  research  policy  cessation  genetics  clinical trials  secondhand smoke  healthcare providers  genetic counseling  healthcare professionals  researchers  rare diseases  Genetic Disease  Smoking Use and Tobacco Facts  Quitting Resources  Guidance, Regulations and Compliance  Prevent Smoking and Tobacco Use 

Many individuals want to know about healthcare professionals or researchers who have knowledge of their conditions. When a condition is rare, it can be difficult to find someone who has seen many cases. Although there is no list of experts in rare diseases, the guidelines below include several ways to identify healthcare professionals who have experience with a particular condition.

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