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NCATS

How to Get Involved in Research

prevention  research  cessation  registry  clinical trials  secondhand smoke  clinical studies  disease registry  researchers  clinical specimens  Genetic Disorders  rare diseases  Rare disorders  Genetic Disease  biospecimen  biorepository  Quitting Resources  Guidance, Regulations and Compliance  Prevent Smoking and Tobacco Use 

Reports about clinical research study results are often in the news, but it can be difficult to find out about studies that are in progress. If you or a loved one has a rare condition, you may be interested in participating in a research study. This guide can help you find current research studies.

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NCATS

Support for Patients and Families

prevention  research  policy  support  cessation  registry  clinical trials  secondhand smoke  disease registry  advocacy  support groups  Genetic Disorders  non-profit/community and advocacy organizations  rare diseases  Rare disorders  Genetic Disease  Patient Advocacy  family support  Smoking Use and Tobacco Facts  Prevent Smoking and Tobacco Use 

Individuals and families affected by rare medical conditions might look to nonprofit support and advocacy groups for different reasons. Some may want to find other people who understand how having the condition affects their lives. Others are searching for medical information, treatment options, the latest research, or financial aid resources. This guide will help you learn more about the different types of information and services offered by nonprofit support and advocacy groups.

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NCATS

Tips for the Undiagnosed

prevention  research  policy  cessation  diagnosis  genetics  clinical trials  secondhand smoke  Genetic Disorders  rare diseases  undiagnosed  Rare disorders  Genetic Disease  Quitting Resources  Prevent Smoking and Tobacco Use 

Trying to find an underlying diagnosis for many conditions can be a very long and frustrating experience. With more rare conditions, a diagnosis can often take many years. Although this can be incredibly difficult, the following information may help you navigate through the process of trying to obtain a diagnosis.

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NCATS

How to Find a Disease Specialist

prevention  research  policy  cessation  genetics  clinical trials  secondhand smoke  healthcare providers  genetic counseling  healthcare professionals  researchers  rare diseases  Genetic Disease  Smoking Use and Tobacco Facts  Quitting Resources  Guidance, Regulations and Compliance  Prevent Smoking and Tobacco Use 

Many individuals want to know about healthcare professionals or researchers who have knowledge of their conditions. When a condition is rare, it can be difficult to find someone who has seen many cases. Although there is no list of experts in rare diseases, the guidelines below include several ways to identify healthcare professionals who have experience with a particular condition.

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NIH

Clinical Trial Requirements for Grants and Contracts

prevention  policy  cessation  nih  clinical trials  secondhand smoke  Smoking Use and Tobacco Facts  Quitting Resources  Prevent Smoking and Tobacco Use 

A research study in which one or more human subjects are prospectively assigned prospectively assigned The term "prospectively assigned" refers to a pre-defined process (e.g., randomization) specified in an approved protocol that stipulates the assignment of research subjects (individually or in clusters) to one or more arms (e.

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CDC

Cervical Cancer Diagnosis and Treatment

cancer  prevention  policy  treatment  cessation  cervical  diagnosis  radiation  medicine  surgery  clinical trials  secondhand smoke  basic information  gynecologic oncologist  chemotheraphy  Smoking Use and Tobacco Facts  Prevent Smoking and Tobacco Use 

Cervical cancer is treated in several ways. It depends on the kind of cervical cancer and how far it has spread. Treatments include surgery, chemotherapy, and radiation therapy.

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CDC

Influenza Antivirals Drug Interactions

flu  prevention  research  policy  safety  ACIP  influenza  cessation  clinical trials  secondhand smoke  antiviral drugs  efficacy  oseltamivir  zanamivir  drug interactions  clinical data  consult package inserts  Smoking Use and Tobacco Facts  Quitting Resources  Guidance, Regulations and Compliance 

Available information for health care providers regarding clinical data on possible drug interactions with influenza antiviral drugs - CDC

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