Support for Patients and Families
Individuals and families affected by rare medical conditions might look to nonprofit support and advocacy groups for different reasons. Some may want to find other people who understand how having the condition affects their lives. Others are searching for medical information, treatment options, the latest research, or financial aid resources. This guide will help you learn more about the different types of information and services offered by nonprofit support and advocacy groups.
Media Type: Html
- SourceUrl: https://rarediseases.info.nih.gov/guides/pages/120/support-for-patients-and-families
- Syndication ID: 17464
- Language: English
- Source: National Center for Advancing Translational Sciences (NCATS)
- Date Syndication Captured: Monday, February 05, 2018 at 09:47 PM
- Date Syndication Updated: Tuesday, October 06, 2026 at 03:11 AM
Tags
General:
prevention
research
policy
support
cessation
registry
clinical trials
secondhand smoke
disease registry
advocacy
support groups
Genetic Disorders
non-profit/community and advocacy organizations
rare diseases
Rare disorders
Genetic Disease
Patient Advocacy
family support
Smoking Use and Tobacco Facts
Prevent Smoking and Tobacco Use
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